Ä¢¹½tvÊÓƵ

The Haematology Nurse Specialist TeamÌý

The team has expertise and experience in assisting withÌýpatients and carersÌýconcerns including:

• information about the disease/illness, investigations, treatments and follow up
• advice about any symptoms;
• support for patients,Ìýrelatives and carers;
• referral to the community nursing teams, such as the District Nurses;ÌýÌý
• referral to other professionals who can offer specialist advice such as benefits, social services or complimentary therapies.

TheÌýadvice line number isÌý0113 2068337.

Please visit theÌýÄ¢¹½tvÊÓƵ Cancer Support pages on Health & WellbeingÌýfor useful advice.

Blood Cancer UK is a community dedicated to beating blood cancer by funding research and supporting those affected. The support team is here for everyone affected by blood cancer, whether it’s leukaemia, lymphoma, myeloma, MDS or MPN, and whether you’ve been diagnosed yourself or a loved one has. They’re here if you’re worried about symptoms, in the middle of treatment or adjusting to life afterwards.Ìý

Tel: 0808 2080 888
·¡³¾²¹¾±±ô:Ìý[email protected]

Leukaemia Care is a national blood cancer charity. They support patients, their carers and families who have been affected by a blood cancer diagnosis. They offer a range of support services, such as one-to-one buddy support, support groups and a support helpline which is available 24 hours a day. They also provide user friendly information about blood cancers in a variety of formats, which are available free of charge to order or download from their website.

Tel: 0808 801 0444
·¡³¾²¹¾±±ô:Ìý[email protected]

MDS UK Patient Support Group is a charity started in 2008 to raise awareness and offer support and information to patients and families affected by Myelodysplastic Syndromes & CMML . We alsoÌýcampaignÌýto make treatments available and to increase Quality of Life (Q0L) for MDS & CMML patients.

Tel: 0207 733 7558
·¡³¾²¹¾±±ô:Ìý[email protected]Ìý

Ìý

Myeloproliferative neoplasms, also called myeloproliferative disorders, are a spectrum of blood cancers*, ranging from mild to more aggressive conditions. There are three main types of MPNs called essential thrombocythaemia (ET), polycythaemia vera (PV) and myelofibrosis (MF). MPNs are rare and they can strike people of any age, even children. Ìý

Tel: 07934 698354 (8:00am-5:00pm)
·¡³¾²¹¾±±ô:Ìý[email protected]

Lymphona Action are the UK’s only charity dedicated to lymphoma, theÌý5th most commonÌýcancer. We’ve been providing trusted information and support for over 35Ìýyears, helping thousands of people affected by lymphoma. Our mission is to make sure no one faces Lymphoma alone. We provide information, online support meetings, a closed Facebook support group, podcasts and many other resources.

Tel (freephone): 0808 808 5555 (Option 1 for helpline)
·¡³¾²¹¾±±ô:ÌýÌý[email protected]ÌýorÌý[email protected]

Myeloma UK is the only charity in the UK focused solely on myeloma patients. As well as providing detailed and user friendly information, they also provide emotional support through their Infoline, where Myeloma Information Specialists can talk to patients, family members and their carers.

Tel: 0800 980 3332

Email: [email protected]

Ä¢¹½tvÊÓƵ Myeloma Support Group is a small informal group of patients and family members who meet once a month at the Robert Ogden Macmillan Centre to find out more about living with myeloma and share experiences.

A team of nurses and support staff working in your local community to support people who have a cancer diagnosis. We’re here to listen to you and offer support, providing a link between your hospital and local services.

Tel: 0113 843 3735
·¡³¾²¹¾±±ô:Ìý[email protected]

Cancer Support Services outside of Ä¢¹½tvÊÓƵ

Macmillan CancerÌýSupportÌý

improves the lives of people affected by cancer. They provide practical, medical and financial support and push for better cancer care. They Ìýprovide booklets on cancer and treatments and run helplines providing cancer information and benefits advice as well as an interactive online community forum.
Tel: 0808 808 0000

²Ñ²¹²µ²µ¾±±ð’s Centre

have drop-in centres located around the country where they can offer practical, emotional and social support to people with cancer and their families and friends. They also have the ²Ñ²¹²µ²µ¾±±ð’s Online Centre, where people can communicate and share experiences with other people who have been affected by cancer.
Tel: 0300 123 1801

·¡³¾²¹¾±±ô:Ìý[email protected]Ìý

Marie Curie

provide care and support for people living with any life threateningÌýillness, whilst also supporting carers and family members. Marie Curie also provide information on practical support which is available to view online or accessible through their helpline.
Tel: 0800 090 2309

Cancer Research UK

provide information online to view and download. They also have an online forum for patients and carers as well as a national helpline.
Tel: 0808 800 4040