The neuroendocrine nurse specialist teamÂ
The nurse specialist has expertise and experience in assisting with patients and carers concerns including:
- Information about the disease illness, investigations, treatments and follow up
- Advice about any symptoms
- Support for patients, relatives and carers
- Referral to the community nursing teams, such as the District Nurses
- Referral to other professionals who can offer specialist advice such as benefits, social services or complimentary therapies.
The advice line number is 0113 2068252. This is a voicemail, please leave us a message with your details and we will get back to you, which may not be on the same day.
Useful resources
NET peer support group
We hold a NET peer support group in Maggie’s on the 4th Friday of every other month. is the best place to know what the dates are.Â
Neuroendocrine Cancer UK
is the only charity in the UK dedicated to providing support and information to people affected by neuroendocrine cancers. They have an interactive online forum which allows people to engage with others affected by neuroendocrine tumours. The foundation produces excellent patient information and has its own Clinical Nurse Specialist Team as well as two specialist counsellors who understand the unique challenges NET patients have to live with. They can also help with putting people in touch with local patient support groups (NET natter groups) to help with the isolation factor.
Tel: 0800 434 6476
Macmillan Cancer SupportÂ
improves the lives of people affected by cancer. They provide practical, medical and financial support and push for better cancer care. They  provide booklets on cancer and treatments and run helplines providing cancer information and benefits advice as well as an interactive online community forum.
Tel: 0808 808 0000
Maggie’s Centre
located around the country where they can offer practical, emotional and social support to people with cancer and their families and friends. They also have the Maggie’s Online Centre, where people can communicate and share experiences with other people who have been affected by cancer.
Tel: 0300 123 1801
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You can contact the centre at Ä¢¹½tvÊÓƵ directly on 0113 457 8364.
Marie Curie
provide care and support for people living with any life threatening illness, whilst also supporting carers and family members. Marie Curie also provide information on practical support which is available to view online or accessible through their helpline.
Tel: 0800 090 2309
Cancer Research UK
provide information online to view and download. They also have an online forum for patients and carers as well as a national helpline.
Tel: 0808 800 4040
Ä¢¹½tvÊÓƵ Cancer Support – our Patient Education Programme
We have brought together information covering a range of health and wellbeing advice for cancer patients who have recently completed or coming to the end of their treatment.
Patient Education Programme