At the Ä¢¹½tvÊÓƵ Regional Adult Cystic Fibrosis Service we look after patients in the Yorkshire region.
What we do
We cover a large geographical area across all of the West, North and East Yorkshire out to the North Sea coast. Our aim is to provide accessible excellent, specialist care to enable adults and young people with Cystic Fibrosis (CF) to maintain the best possible health and participate as fully as possible in normal activities and aspirations, including school, university, college, sports and work.
The inpatient ward and adjoining five acute outpatient cubicles offer state of the art facilities purpose-built within St James’s University Hospital with specific needs of adults with CF in mind. People with CF are vulnerable to cross-infection. These infections can pass to other people with CF, particularly chest infections so the Unit and the Ward is designed and run to minimise any such risk.
The Unit is designed to facilitate effective and safe care. Inpatients receive their care in their own side-rooms with en-suite facilities. Many patients, where possible, receive their care, including intravenous antibiotics, at home with a designated team of four specialist nurses supporting this service.
Routine segregated outpatient clinics are undertaken three times a week at Seacroft Hospital. Patients are seen in individual rooms and are seen by the dietitian, physiotherapist, nurse and doctor at each visit.
In 2007 we became the first CF unit to successfully implement full electronic patient records, which has significantly improved quality of care.
We are proud of the outcomes for our patients which are above the UK average in all areas including lung function, survival and nutrition. These outcome measures are demonstrated in the National UK Registry of the Cystic Fibrosis Trust and are available in the public domain via the .
The Ä¢¹½tvÊÓƵ Adult CF Unit has a well-established clinical research programme and is an accredited site of the European Cystic Fibrosis Society -Clinical Trial Network (ECFS – CTN). As well as undertaking original studies we also take part in multi-centre clinical trials.
Attending clinic
The Outpatient Department is situated at Seacroft Hospital, York Road, Ä¢¹½tvÊÓƵ, West Yorkshire, LS14 6UH.
All outpatient clinics are run by a Senior Consultant with the full multidisciplinary team. At the outpatient clinic patients would be expected to see the nursing team, the physiotherapist, dietitian and doctor.
At each appointment patients have their weight, height (if appropriate), lung function and saturations monitored. Routine measures such as blood pressure and blood glucose will also be performed. Blood tests are taken according to requirements. However patients will have full assessments bloods and CXR annually.
The team
Consultants
Dr Daniel Peckham (Clinical Lead)
Dr Paul Whitaker
Dr Ian Clifton
Dr Christine Etherington (Associate Specialist)
Microbiology
Dr Miles Denton (consultant)
Dr Richard Barton (Mycology)
CF Secretaries
Tina Payne-Gath
Sarah Street
Ward Manager/Senior Sister
Rachel Metcalfe
CF Clinical Nurse Specialists
Julie Johnson
Jill Harris
Katie Taylor
CF Liaison Support Worker
Emma McPartling
Specialist CF Dietitians
Alison Morton
Laura Cassidy
Kathryn Forbes
Specialist CF Physiotherapist
Kim Pollard
Ruth Watson
Louise Cooke
Louise O’Leary
Rotational senior II
Rotational junior
Specialist Pharmacists
Nicola Shaw
Sarah Huntington
Ward Clerk
Julie Scholes
Data Clerk
Fazia Fazal
Social Worker
Sharon Eccleston
Psychologist
Sophie Cammidge
Research team
Dr Giles Fitch (Research Fellow)
Ann Wood (Research Nurse)
Lindsey Gillgrass (Research Nurse)